About Gadolinium & Nephrogenic Systemic Fibrosis (NSF)

Nephrogenic Systemic Fibrosis (NSF) is a rare but potentially fatal degenerative disease of the skin and internal organs. First identified in 1997, it occurs only in a few patients -- those who have a serious kidney disease and have undergone magnetic resonance imaging (MRI) or magnetic resonance angiography (MRA) tests. Many scientists believe NSF is caused by exposure to gadolinium, a chemical used as a dye in MRI/MRA tests. In fact, one study showed that more than 95 percent of NSF patients had been exposed to some type of gadolinium within three months of contracting the disease. In response, the FDA has already recommended that doctors avoid gadolinium, and MRI/MRAs in general, in patients with kidney failure. Researchers in the United States and Europe are working to determine whether the substance should be banned altogether.

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Gadolinium / Nephrogenic Systemic Fibrosis Background

Nephrogenic Systemic Fibrosis Treatment

Detailed Information on Nephrogenic Systemic Fibrosis

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Did you have kidney failure, kidney function deficiency, or other kidney problems at the time the scan (or scans) were done? Yes No
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PERSONAL INFORMATION

First Name: *
Last Name: *
Address:
City:
State:
Zipcode:
Phone: -- ext.
Work Phone: -- ext.
E-mail Address: *

CASE INFORMATION

Have you been diagnosed with NSF (Nephrogenic Systemic Fibrosis) or NFD (Nephrogenic Fibrosing Dermopathy)? Yes No
When and where was the diagnosis made?
When did your problems start?

Describe your symptoms and how they developed.
Did you have an MRI (Magnetic Resonance Imaging) or MRA (Magnetic Resonance Angiography) scan done before your symptoms began? Yes No
Where and when was the scan (or scans, if more than one) done?
Did you have kidney failure, kidney function deficiency, or other kidney problems at the time the scan (or scans) were done? Yes No
Describe the kidney problems you had.
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