Home : What is Nephrogenic Fibrosing Dermopathy?

What is Nephrogenic Fibrosing Dermopathy?

Nephrogenic Fibrosing Dermopathy is a disorder that seems to occur primarily in kidney patients who have been exposed to gadolinium. It involves the fibrosis of skin, joints, eyes, and other organs. It has only recently been discovered, and since there seems to be a strong correlation between Nephrogenic Fibrosing Dermopathy and gadolinium, the FDA has released warnings about using gadolinium-based contrast dyes for MRI scans.

The Symptoms of Nephrogenic Fibrosing Dermopathy

Nephrogenic Fibrosing Dermopathy is a disorder which involves the Fibrosis of the skin, joints, eyes, and other organs. Most often, symptoms seem to be confined to the skin. This usually includes a tightening and swelling of the skin, especially the skin of the extremities. This may also lead to contractures and a limitation in movement.

The Link between Nephrogenic Fibrosing Dermopathy and Gadolinium

Although a definite cause and effect link has not been established between gadolinium and Nephrogenic Fibrosing Dermopathy, there does appear to be a strong correlation between the two. Thus, the FDA has put out warnings regarding the use of gadolinium-based contrast dyes in MRI scans.

Treatment of Nephrogenic Fibrosing Dermopathy

A number of treatments are being investigated for Nephrogenic Fibrosing Dermopathy, but so far, none of these treatments has been consistently successful. The best treatment thus far appears to be kidney transplants or improving renal functioning.

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PERSONAL INFORMATION
First Name: *
Last Name: *
Address:
City:
State:
Zipcode:
Phone: -- ext.
Work Phone: -- ext.
E-mail Address: *

CASE INFORMATION
Have you been diagnosed with NSF (Nephrogenic Systemic Fibrosis) or NFD (Nephrogenic Fibrosing Dermopathy)? Yes No
When and where was the diagnosis made?
When did your problems start?

Describe your symptoms and how they developed.
Did you have an MRI (Magnetic Resonance Imaging) or MRA (Magnetic Resonance Angiography) scan done before your symptoms began? Yes No
Where and when was the scan (or scans, if more than one) done?
Did you have kidney failure, kidney function deficiency, or other kidney problems at the time the scan (or scans) were done? Yes No
Describe the kidney problems you had.
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